Occult Awareness

Navigating the Maze of Rare Conditions: Why Sharing Our Stories Matters

May 01, 2024 Amy Wang-Hiller Episode 1
Navigating the Maze of Rare Conditions: Why Sharing Our Stories Matters
Occult Awareness
More Info
Occult Awareness
Navigating the Maze of Rare Conditions: Why Sharing Our Stories Matters
May 01, 2024 Episode 1
Amy Wang-Hiller

Send us a Text Message.

In this deeply personal episode, join Amy as she shares her harrowing journey through a labyrinth of medical mysteries that span years of misdiagnoses and ineffective treatments. From the initial shocking symptoms following a float tank session to the life-altering diagnosis of Ehlers-Danlos Syndrome and related complications, Amy's story is one of resilience and relentless pursuit of answers. Delve into her experiences with sudden paralysis, chronic pain, mental health crises, and the ongoing struggles with the healthcare system's overlook of rare conditions. Her narrative sheds light on the critical need for awareness, proper diagnosis, and the emotional toll of living with misunderstood illnesses. Amy's voice brings to life the silent battles many face but few hear about, calling for a shift in how we perceive and treat the unseen.

Hashtags:
#RareDiseaseAwareness #MedicalMystery

Support the Show.

Please follow us on social media @Occult_Awareness, and join us on Facebook.
Sign up newsletterhttp://occultawareness.com/ & watch the video format on Youtube @OccultAwareness

Please leave your review. Your feedback is so valuable to us! And it will help us reach more listeners like you.

Support Us on Ko-fi: https://ko-fi.com/occultawareness

If you found this episode valuable, please consider supporting us on Ko-fi. Your donations help us continue to raise awareness and share important stories.

Thank you for your support!

Occult Awareness +
Help us continue making great content for listeners everywhere.
Starting at $3/month
Support
Show Notes

Send us a Text Message.

In this deeply personal episode, join Amy as she shares her harrowing journey through a labyrinth of medical mysteries that span years of misdiagnoses and ineffective treatments. From the initial shocking symptoms following a float tank session to the life-altering diagnosis of Ehlers-Danlos Syndrome and related complications, Amy's story is one of resilience and relentless pursuit of answers. Delve into her experiences with sudden paralysis, chronic pain, mental health crises, and the ongoing struggles with the healthcare system's overlook of rare conditions. Her narrative sheds light on the critical need for awareness, proper diagnosis, and the emotional toll of living with misunderstood illnesses. Amy's voice brings to life the silent battles many face but few hear about, calling for a shift in how we perceive and treat the unseen.

Hashtags:
#RareDiseaseAwareness #MedicalMystery

Support the Show.

Please follow us on social media @Occult_Awareness, and join us on Facebook.
Sign up newsletterhttp://occultawareness.com/ & watch the video format on Youtube @OccultAwareness

Please leave your review. Your feedback is so valuable to us! And it will help us reach more listeners like you.

Support Us on Ko-fi: https://ko-fi.com/occultawareness

If you found this episode valuable, please consider supporting us on Ko-fi. Your donations help us continue to raise awareness and share important stories.

Thank you for your support!